A week or so ago, we received an unexpected package in the mail. It was from the Leukemia & Lymphoma Society (LLS), welcoming Lut to the grant program.

Me: “Huh. Well, that’s nice, I can use it to pay his health insurance premiums if I can get sufficient proof of payment in a form I can submit to them. Maybe Accredo billed LLS and that’s how ( Read more... )

Wednesday, August 17, early afternoon: Accredo calls.
Karen: “I’m calling from Accredo, patient advocacy.” collects standard identifying information. “We show that insurance is covering both prescriptions with $0 co-pay. We can schedule your order now.”
Me: . o O (I want to know what happened to get the amount owed back to $0, but I’m not even ( Read more... )

Saturday: No news.
Monday: No news.
Tuesday afternoon, Accredo calls.
Lacey: "This is Lacey from co-pay assistance. We want you to apply for a grant from the Leukemia & Lymphoma Society to cover the co-pay."
Me: "I thought Medicaid was covering that?"
Lacey: "Who told you that?"
Me: "Accredo. On Friday."
Lacey: "Well, I don't have any notes about ( Read more... )

I was supposed to go to Seattle on Wednesday, June 9, but Lut was admitted to the hospital on June 6, after he grew increasingly confused over the course of the weekend.

The hospital never quite figured out what he had. “Maybe pneumonia.” But it cleared up after a few days, and he was discharged on June 9, about the same time the flight I’d ( Read more... )

One of the things about cancer treatment is that you make plans, and then things happen and then you probably throw out that plan and try something different. And all of this is both expensive and unavoidable. Not necessarily expensive to the patient personally, because healthcare costs are beyond bizarre and well into surreal in this country. But ( Read more... )